JDRF Announces Launch of Global Type 1 Diabetes Index
PR97884
NEW YORK, Sept. 21, 2022 /PRNewswire=KYODO JBN/ --
--The first-of-its-kind index will raise awareness of the burden and unmet need
of people living with type 1 diabetes around the world.
JDRF (
), the leading global type 1 diabetes (T1D) research and advocacy organization,
announces the launch of the Type 1 Diabetes Index (
) (T1D Index). The T1D Index is a first-of-its-kind data simulation tool that
measures the human and public health impact of the T1D crisis in every country
across the globe. Until now, there have been wide gaps in the data about the
incidence and impact of T1D. Leveraging data and insights from the T1D Index
can help change the lives of people living with T1D by identifying attainable
country-by-country interventions including timely diagnosis, accessible care
and funding research that could lead to cures.
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The T1D Index and accompanying research has been published in the leading
diabetes and endocrinology medical journal, The Lancet Diabetes & Endocrinology.
T1D is an autoimmune condition and one of the fastest-growing chronic health
conditions, impacting nearly nine million people across the globe. Certain
factors like family history can increase risk, but it is not caused by diet or
lifestyle. T1D causes the pancreas to make very little insulin or none at
all--this means the human body cannot convert food into energy, which can lead
to long-term complications including damage to the kidneys, eyes, nerves, heart
and even premature death. There is currently no cure for T1D.
"As a member of the T1D community, I know many are not as fortunate as I am to
have the resources necessary to live a healthy and fulfilled life," Aaron
Kowalski, Ph.D., JDRF CEO, said. "This is why I am so proud that significant
progress has been made to understand T1D's global impact through the T1D Index.
We are calling on government and public health decision makers throughout the
world to utilize the tool to identify and implement interventions that can
change the trajectory of T1D."
JDRF collaborated with key partners and experts around the world to develop the
T1D Index--using the results from a global survey of more than 500
endocrinologists and 400 publications to simulate the state of T1D globally and
at the country level.
The Index uniquely illuminates the human burden of T1D by highlighting "missing
people," which is the number of people who would still be alive today if they
had not died early due to complications from T1D, and "healthy years lost,"
which represents time lost to ill-health, disability or early death from living
with T1D.
Simulations from the T1D Index suggest that globally, as of 2022, there are
more than 3.86 million "missing people" and an average of 32 "healthy years
lost" to T1D per person, if diagnosed at age 10.
T1D presents a profound human, emotional and financial burden for those who
live with it--and prevalence is on the rise. Simulations from the T1D Index
have led to the identification of four key interventions that could change the
current trajectory for T1D and its impact on people around the world:
-- Timely diagnosis: enabling better education and training for medical
professionals to accurately diagnose T1D. If the global population has
access to timely diagnosis from 2023, 668,000 more people could be alive
in 2040.
-- Insulin and strips: creating barrier-free access to insulin and blood
glucose testing strips. If the global population has access to insulin
and testing strips from 2023, and coaching to self-manage the condition,
1.98 million more people could be alive in 2040.
-- Pumps and CGMs: ensuring everyone living with T1D has access to
technology that automates glucose monitoring and insulin delivery.
673,000 more people could be alive in 2040 if everyone with T1D has
access to the technology available from 2023.
-- Prevention and cures: making the case for further investment and
research in emerging prevention, treatments and cures. 890,000 more
people could be alive in 2040 if we find cures.
Once interventions are identified on the global and country level, the T1D
Index encourages users to take action by sharing the data and findings with
their networks and local decision makers, and connecting with other T1D
advocates in their communities.
Additionally, the T1D Index shines a light on important statistics about the
burden of T1D globally, including:
-- Since 2000, T1D prevalence has increased at four times the rate of
global population growth.
-- The expected number of people living with T1D in 2040 will be 17.43
million.
-- The number of "missing people" in the year 2040 is projected to be 6.85
million.
The T1D Index data simulations are the best estimate currently available with
version 1.0 testing to +/- 6 percent against real-world data. This is a
significant improvement from leading existing estimates that test to +/- 35
percent against the same data. It is a collaborative development by JDRF, Life
for a Child (
), International Society for Pediatric and Adolescent Diabetes (ISPAD) (
), International Diabetes Federation (
) (IDF), and Beyond Type 1 (
). The T1D Index is supported by founding corporate sponsor, Abbott, with
additional support from Lilly, Vertex Pharmaceuticals and The Leona M. and
Harry B. Helmsley Charitable Trust. In future releases, the Index will expand
to include T1D's impact on economic costs, mental health and quality of life.
The data will also be broken down at regional and demographic levels.
You can learn more about the T1D Index here (
).
About JDRF
JDRF's mission is to accelerate life-changing breakthroughs to cure, prevent,
and treat T1D and its complications. To accomplish this, JDRF has invested more
than $2.5 billion in research funding since its inception. It is an
organization built on a grassroots model of people connecting in their local
communities, collaborating regionally for efficiency and broader fundraising
impact, and uniting on a national stage to pool resources, passion, and energy.
It collaborates with academic institutions, policymakers, and corporate and
industry partners to develop and deliver a pipeline of innovative therapies to
people living with T1D. JDRF staff and volunteers throughout the United States
and five international affiliates are dedicated to advocacy, community
engagement, and the vision of a world without T1D. For more information, please
visit jdrf.org or follow on Twitter (@JDRF), Facebook (@myjdrf), and Instagram
(@jdrfhq).
About Type 1 Diabetes (T1D)
T1D is an autoimmune condition that causes the pancreas to make very little
insulin or none at all, leading to long-term complications which can include
highs and lows in blood sugar; damage to the kidneys, eyes, nerves and heart;
and even death if left untreated. It is one of the fastest-growing chronic
health conditions. Many believe T1D is only diagnosed in childhood and early
puberty, but diagnosis in adulthood is on the rise, and accounts for nearly 50%
of all T1D diagnoses. The onset is sudden and nothing can be done to prevent it
yet--it is not related to diet or lifestyle. While its causes are not yet
entirely understood, scientists believe that both genetic factors and
environmental triggers are involved. There is currently no cure for T1D.
SOURCE: JDRF
CONTACT: Ayana Young, JDRF International, ayoung@jdrf.org, +1 347-296-2494
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